Program 1 · 6.4% of program spending $22.2M
Education Program Expenses.
The 990 read · EIN 13-1930701 · MD · Fiscal year 2024
Cystic Fibrosis Foundation
Cystic Fibrosis Foundation: CEO salary, finances and where donations go
In its own words
“To cure cf and provide all people with cf the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the cf community, and advancing high-quality, specialized care.”
Data only Figures straight from the filing, screened by our rules. Not yet reviewed in depth by a CPA.
Methodology by Amir Arani, CPA, CA · Updated
- Top pay
- $1.9M John C Mahler Jr Md, 0.4% of spending
- Revenue
- $355.8M 27% from donations and grants
- Spent
- $439.1M 79% on programs, as reported
- Net assets
- $4.69B end of 2024
- Savings
- 128.3 months of spending, net assets ÷ spending
- People
- 875 employees, 56,403 volunteers
01 · Red flags
No red flags in its latest filing.
We screen every filing against twelve rules. A flag is a prompt for a closer look, not a finding of wrongdoing.
No reported asset diversions, no insider transactions, no fundraisers keeping most of the money, and the governance policies we check for are in place.
02 · Where $1 goes · 2024
Of each dollar it spent, 79.0¢ went to programs, as reported.
The split the charity filed.
79.0¢
Programs, $346.7M
8.0¢
Fundraising, $35.1M
13.1¢
Admin, $57.3M
Cost to raise $1
37¢
as reported
For each dollar donated, Cystic Fibrosis Foundation spent 37¢ on fundraising.
Fundraising ÷ $95.9M contributions · Form 990 Parts VIII, IX03 · What it does
What it told the IRS it spent on.
The charity's own description of its largest programs, with what each cost.
Program 2 · 5.2% of program spending · $3.2M in grants $18.2M
Community Service Program Expenses.
04 · The savings
Net assets: $350.6M to $4.69B in 11 years.
Net assets at each fiscal year end, 2012 to 2024.
351
598
3679
3732
4194
3775
4237
5099
5417
4444
4593
4694
05 · Who gets paid
The 8 highest-paid people.
Reportable pay in 2024, from the charity and related organizations.
John C Mahler Jr Md
Chief Investment Officer
$1,866,868
Andrew Lewis
Managing Director, Investments
$1,363,454
Earl a Lee
Managing Director, Investments
$1,226,269
Michael P Boyle Md
President & CEO
$1,054,388
Eric Koehrsen
Managing Director, Investments
$976,105
Irena Barisic
EVP & Chief Operating & Financial Officer
$761,939
John P Clancy Md
Svp, Clinical Research
$669,826
Gentiana S Arovas
Managing Director, Investments Operations
$642,532
Largest outside contractors
| Contractor | Service | Paid |
|---|---|---|
| Vertex Pharmaceuticals Inc | Contracted research | $12,500,000 |
| Prime Medicine Inc | Contracted research | $6,000,000 |
| Anagram Therapeutics Inc | Contracted research | $5,500,000 |
| Pioneering Medicine (cf) | Contracted research | $5,211,571 |
| Slalom LLC | Technology consulting | $3,656,673 |
06 · Questions
The questions people ask about the Cystic Fibrosis Foundation.
Short, sourced answers. Each one stands on its own.
How much does the Cystic Fibrosis Foundation CEO make?
John C Mahler Jr Md, Chief Investment Officer, received $1,866,868 in reportable compensation in 2024, 0.4% of Cystic Fibrosis Foundation's $439.1M in spending.
Form 990 (2024), Part VIIWhat percentage of Cystic Fibrosis Foundation donations go to programs?
Cystic Fibrosis Foundation reported 79% of 2024 spending as programs, 8% as fundraising and 13.1% as management.
Form 990 (2024), Part IXHow much money does Cystic Fibrosis Foundation have?
Net assets were $4.69B at the end of 2024, about 128.3 months of spending.
Form 990 (2024), Part XDoes Cystic Fibrosis Foundation have any red flags in its filing?
Its latest Form 990 triggered none of our twelve screening rules, which cover reported asset diversions, insider transactions, fundraiser costs, governance policies and spending patterns.
Form 990 (2024)07 · Sources and citing
Every number, traced.
- Cystic Fibrosis Foundation Form 990, 2024 (IRS e-file)
- Cystic Fibrosis Foundation Form 990 history (ProPublica Nonprofit Explorer)
Cite this page
Amir Arani, “Cystic Fibrosis Foundation: CEO salary, finances and where your dollar goes,” Charity Math, updated 2026-11-07. https://charitymath.com/charities/cystic-fibrosis-foundation/